Human Rights

Human rights law and discourse help to ensure respect for individual worth and the common good in the face of powerful biotechnologies. Claims to universal human rights depend, in part, on formal recognition of our common humanity. Drawing on human rights as a broad framework for establishing policies regarding human biotechnologies, both the Council of Europe’s Convention on Human Rights and Biomedicine (Oviedo Convention) and UNESCO’s Universal Declaration on the Human Genome and Human Rights  reject genetic modifications that would alter the genomes of future generations.


CGS-authored

What do recent advances in molecular genetics have to do with human rights? Quite a lot, it turns out. And key human rights documents have recognized this for some time.

Over the past few years, new “gene editing” tools that...

Biopolitical Times
The “Geneva Statement” is a robust and cautionary statement about the future of heritable genome editing that brings new voices and perspectives to a conversation that has so far been dominated by scientists and bioethicists.
Internal Content

To: The Biden-Harris Administration

From: Marcy Darnovsky, PhD, Executive Director, Center for Genetics and Society[1]

December 2020

 

Heritable...

Three candles are lit in a darkened room.

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Against a shirt with black and gold stripes, a sticker reads "Do you care?" in a thought/speech bubble.

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A prescription bottle lays on its side, with pills spilling out of its container

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A pile of puzzle pieces are scattered.

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A traffic light appears yellow to signify caution (rather than a green go, and a red stop)

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Silhouette of a baby. The baby's back is turned away from the camera, facing a window with sunlight. A rubber duck and several other toys are placed on the baby's side.

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