Disability Rights

Disability rights advocates have been among the earliest and most vocal critics of emerging human genetic and assisted reproductive technologies. They are acutely aware that technologies enabling the selection of “good” genes and “normal” traits can devalue the bodies and ultimately the lives of people with disabilities. These concerns are grounded in histories of discrimination and abuse, notably the twentieth-century state-sponsored sterilization projects in dozens of U.S. states, and the Nazi campaigns to exterminate hundreds of thousands of disabled people in German medical facilities and concentration camps. Today, disability rights advocates ask whether innovations such as embryo screening and gene editing for reproduction are likely to create a future that respects or devalues difference and disability as a part of the human condition.


Biopolitical Times
Disability rights advocates have been among the earliest and most vocal critics of human germline editing. Many thinkers and writers in this area highlight how a technology that enables the selection of “good” genes and “normal” traits can devalue the lives of people with disabilities.

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Rosemarie Garland-Thomson discusses disability as an identity and the conflicts raised by genetic testing and counseling on Laura Hercher’s podcast, The Beagle Has Landed.

Chapters:

3:00 “I didn’t understand myself as a disabled person because there was no identity...

Biopolitical Times

This article was cross-posted on Disability Remix, the blog of the Paul K. Longmore Institute on Disability at San...

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From next-generation prenatal tests, to virtual children, to the...

Contents of DNA spit kit, revealing a bio specimen bag and a tube container

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Archived black and white photo from the Tuskegee study. A white doctor draws blood from a black study participant with two others observing.

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Several protesters hold signs behind a long banner stating "March for Science."

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Biopolitical Times
Biopolitical Times
Illustration of a child looking directly forward to a double helix oriented vertically. A  glimmer of light appears between the child and the DNA.

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