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In April, the Caldicott Committee, including British government chief scientist Sir Mark Walport proposed new rules for data-sharing electronic medical records. What they failed to make transparent is that genetic information including whole genomes will be integrated into medical records in the future - as part of a plan proposed by the Wellcome Trust, of which Walport used to be director.
The plan, which is backed by United Kingdom Prime Minister David Cameron, involves sequencing the DNA of everyone in England and adding this information as an attachment to each person's medical file. The data will then be shared with commercial companies including private healthcare companies, the pharmaceutical industry and web-based companies such as Google; without people's knowledge or consent. Claims by the Cameron administration that the data will be "anonymised", by removing names, are completely meaningless because identities could be deduced from other information -...