Joe and The Gene: A Mother's Perspective
By Lia Tremblay,
NPR
| 04. 09. 2020
Joe has my nose, his father’s eyes, and facial expressions that mirror those of his grandfathers. But the unexpected “misspelling” coiled up in his DNA has also given us a child we could never have imagined—and would never want to replace.
Seeing Thomas Hunt Morgan’s experiments with fruit flies in episode one of The Gene: An Intimate History took me right back to ninth grade biology. My entire class of 14-year-olds paired up to carefully sedate swarms of fruit flies and group them according to their physical characteristics. Then we matched them up for mating and inspected their offspring to see which eye colors, stripe patterns and wing shapes had passed down to the new generation.
For many years, that was the extent of my interest in genetics.
Then came Joe. The only child of my husband and me, Joe is 11 years old, laughs a lot and loves to dance. Like a lot of 11-year-olds, he spends too much time on his iPad, ignores our directions and dawdles over dinner.
But Joe is also very different from most of his peers. He speaks only a few words, learns new things at a leisurely pace, needs help with tasks like climbing steps and opening doors, and is about the size of a child half his age.
Like Susannah, the...
Related Articles
By Emma McDonald Kennedy
| 11.24.2024
Gig work in childcare, nursing, and transportation; non-invasive prenatal testing; gene editing; and space expeditions can all be attributed to one mistaken, pervasive assumption: that “we can innovate our way out of the thorniest problems, including reproductive ones” (22). In Reproductive Labor and Innovation: Against the Tech Fix in an Era of Hype, feminist political theorist Jennifer Denbow demonstrates why the U.S. has put so much of its hopes, and its money, on technological “innovations”––and why that hasn’t addressed...
By Arwa Mahdawi, The Guardian | 11.19.2024
Photo "Elon Musk Presenting Tesla's Fully Autonomous Future" by Steve Jurvetson on Flickr (CC BY-NC-SA 2.0)
Is Elon Musk the dinner party guest from hell? It sure seems that way. Not only is the man desperate for people to...
By Jantina de Vries, EthicsLab | 11.15.2024
The conversation around human heritable genome editing (HHGE) in South Africa is marked by controversy and conflicting interpretations of the law. At the center of this debate lies a team of lawyers based at a South African university, who have...
By Zeenat Beebeejaun, PET | 10.28.2024
Building on the 2016 BBC Panorama documentary 'Inside Britain's Fertility Business', which exposed the use of controversial fertility treatment add-ons in private fertility clinics (see BioNews 880), Manuela Perrotta's book, Biomedical Innovation in Fertility Care, unveils regulatory inadequacies...