Aggregated News
Some of you older folks may remember the case in which geneticist Therese Markow (then of Arizona State, now of UC-San Diego) bled a Native American tribe on the promise of studying diabetes, and then piggybacked some research on schizophrenia and population structure and history onto that promise; except that she didn't tell them about it and they didn't consent to it. This had been "situation normal" in the field for decades, but in the wake of the Native American Graves Protection and Repatriation Act (NAGPRA, born 1990) and the Human Genome Diversity Project (HGDP, died 1996), it is no longer acceptable practice.
The Havasupai case helped to reframe the relationship between scientists and Native peoples, which had been tested by the HGDP, and which had relied for decades on the assumption that there was a gentleman's agreement between the geneticist and the tribe, and that the geneticist could say anything to get the genetic samples from the tribe, and after it was out of their bodies, it was the property of the scientist, who could then do pretty...
The Havasupai case helped to reframe the relationship between scientists and Native peoples, which had been tested by the HGDP, and which had relied for decades on the assumption that there was a gentleman's agreement between the geneticist and the tribe, and that the geneticist could say anything to get the genetic samples from the tribe, and after it was out of their bodies, it was the property of the scientist, who could then do pretty...
